11/27/2024
Episode 42 - Roberta & Jessie - Mother and Daughter Fighting Together Roberta and Jessie sat down with Suzanne just after the Cleveland Walk To End Lupus Now. This Mother/Daughter duo have an amazing story that we thought was fitting to share during the holiday season.
Want to share your lupus story? Email our shows producer, Alex Acevedo, to book your appearance! Al
10/24/2024
Episode 41 - Medicare Changes 2025 - Becky Hayward - OSHIIP Suzanne is joined by Becky Hayward, The Outreach & Education Supervisor, from the Ohio Senior Health Insurance Information Program (OSHIIP). Becky discusses important changes coming to Medicare for 2025 that patients will want to consider during this open enrollment season!
10/15/2024
Episode 40 - Chad Limones - Aurinia Pharmaceuticals
On this episode Suzanne is joined by Chad Limones from Aurinia Pharmaceuticals to discuss lupus nephritis. The two have a broad conversation about what exactly lupus nephritis is, the warning signs, and what resources are available for patients that have been diagnosed or suspect they have lupus ne
09/26/2024
Episode 39 - William Fikter, MD Suzanne sits down with Dr. William Fikter, a Psychiatrist, with Signature Health. They discuss the challenges that lupus patients may face with mental health and the ways that Signature Health and the LFA,GOC can help!
If you would like to share your story, or have a topic you think would benefit
08/29/2024
Episode 38 - Steve Perhach - Being a Supportive Partner Suzanne sits down with Steve Perhach to talk about his experience with being married to someone with lupus. Steve’s wife, Kelly, is a brave lupus warrior who has had her share of ups and downs throughout her journey. They are both heavily involved in their community and spend time volunteering at
07/24/2024
Episode 37 - Hannah Powell
Suzanne joined by Hannah Powell, a relatively newly diagnosed patient who has already had her fair share of trials and tribulations. Hannah talks candidly about her diagnosis, the challenges she's faced and what finding the Walk To End Lupus Now has meant to her.
If you would like to share your s
06/24/2024
Episode 36 - Steve Morris - Intervention Point Suzanne sits down with Steve Morris of Intervention Point to discuss the benefit of setting up a trust and what it could mean for your family. Not only can they provide security, and peace of mind, but also keep the courts and government from complicating things when that time comes. To learn more
05/27/2024
Episode 35 - Links For Lupus Kelly Perhach stopped by the office to provide a recap of her recent Links Fore Lupus golf outing. Kelly holds many fun and unconventional fundraisers throughout the year to raise money for our chapter and we are beyond thankful for all of her efforts! If you would like to share your story with lu
04/16/2024
Dr Van Warren- Patient Panel For this month's episode we wanted to share Dr. Van Warren's presentation from our Passport to Better Health event in April. Dr. Warren provides a broad overview of lupus and answers patient questions.
03/04/2024
Episode 33 - Ashley Houston - Honoring Dontasia Nevins On this episode Suzanne sits down with Ashley Houston. Ashley's sister, Dontasia Nevins, passed away in January of 2023 from complications of lupus. Ashley discusses her sisters battle with lupus, keeping her memory alive, and what she does to raise awareness for lupus warriors! Visit https://www.fa
02/08/2024
Episode 32 - Samantha - Patient Navigator Suzanne sits down with our newest Patient Navigator Samantha to discuss her lupus journey, role at the chapter, and so much more. If you would like to share your story, or have a topic you think would benefit lupus patients, contact our shows producer Alex. Alex@lupusgreaterohio.org
01/20/2024
Episode 31 - Dr. Hermine Brunner, MD, MSc, MBA On this episode of My Lupus Living Room Suzanne connects with Dr. Hermine Brunner, Director of Rheumatology, at Cincinnati Children's Hospital. Dr. Brunner discuss pediatric lupus nephritis, and her exciting project known as the PLUMM Study!
01/04/2024
Episode 30 - Patti Esparza Suzanne sits down with Patti Esparza to discuss Patti's remarkable journey with lupus nephritis. Patti opens up about the the challenges she faced including a having a kidney transplant as well as the importance of having a strong support system to lean on along the way. If you would like to empower
12/01/2023
Episode 29 - Lisa's Lucky Lupus Journey Alex sits down with Lisa Brieding on this episode of the podcast. Lisa shares her story of getting diagnosed with lupus, becoming a facilitator & patient navigator with our chapter, and why she feels lucky when it comes to her journey!
10/30/2023
Episode 28 - Alex - Digital Assets Manager With Suzanne on vacation, our Lead Project Coordinator, Adrienne Fernandez takes the helm for this episode of My Lupus Living Room. Adrienne sat down with Alex, our Digital Assets Manager, to learn a little more about him and what he does here at the LFA, GOC. They also give a sneak peak at what our
09/29/2023
Episode 27 - A Covid Story In this episode of My Lupus Living Room Adrienne shares her recent experience with Covid and the struggles she faced. Suzanne is also joined by our Lead Patient Navigator, Rita Piccin BS, ND, RN and the group discusses the uptick in cases, getting the new vaccine, and what patients should do to prot
06/29/2023
Episode 26 - Bryan - Development Manager On this episode of My Lupus Living Room Suzanne sits down with our new Development Manager, Brian Haynes. Brian shares a little bit of his background and provides updates on some of our fundraising events coming up.
05/30/2023
Episode 25 - Mi Sala de Estar Con Lupus en Espanol On this episode of My Lupus Living Room our board chair, Maria Rey Woyma, sits down with Gabriela Sison, MSN, BSN, RN of GSK. Both women are fluent in spanish so we took this opportunity to record this podcast that caters to our spanish speaking audience.
04/28/2023
Episode 24 - Bev & Virgil - Conquering Lupus & Life Together In episode 24 Suzanne sits down with Bev & Virgil at the LFA, GOC office. This wonderful couple shares their amazing journey and the lessons they learned along the way. Their story is a lesson in strength, love, and perseverance!
03/25/2023
Episode 23 - Dr. Emily Littlejohn, DO, MPH On this episode of My Lupus Living Room, Adrienne fills in for Suzanne and sits down with Dr Emily Littlejohn, DO, MPH from the Cleveland Clinic. She may be our most accomplished guest yet, and while she did complete her Rheumatology Fellowship at that school up north, she's made up for it in spades
03/01/2023
Episode 22 - Lupus Warrior Spotlight - Kelly In this edition of My Lupus Living Room, Suzanne sits down with Kelly Perhach. Kelly shares all of the ups and downs of her lupus journey.
01/13/2023
Episode 21 - The Vegan Vixen Today we have the pleasure of sitting down with Chef Chanel Nowel, AKA The Vegan Vixen! She shares her lupus journey and how she uses a plant based diet to manage her lupus.
12/23/2022
Episode 20 - Navigating The Holiday's While the holiday's are supposed to be an exciting time filled with family and love, they can be extremely tough for lupians. We discuss tips and tricks to make sure your holiday season is joyous and filled with cheer, and provide an overview of the year ahead at LFA, GOC.
11/23/2022
Episode 19 - Thankful, Grateful, and Ready To Keep Fighting! As the embark on another holiday season, we are grateful for our brave lupus warriors, and supporters who fight with us everyday in the battle to End Lupus Now!